Posted in Awareness

Rock the Red Survivor Stories: Andrea's Story

This year, for Rock the Red, I brought on fellow survivors who were willing to share their stories. Ladies whom I crossed paths with in an online support group for Women with heart disease. For years, I didn’t participate in any sort of support group; always thought I had things under control. But like anyone with a chronic illness or disease, it helps to have that extra support from others going through similar situations – a reminder that you to are not alone in the fight. I’d like to introduce Andrea. Andrea has recently begun her journey dealing with heart disease, but with her positive attitude and children by her side, she’s tackling this challenge one day at a time.

I would love to share my story!!! I am a 41yo women recently diagnosed with stress induced cardiomyopathy on December 6th, 2019. This is my third round of fighting CHF due to cardiomyopathy with my current EF at 20-25%. I will never quit fighting and plan to be around for my children as long as I can! The hardest part was not being able to work (as a 17 year veteran teacher) and bring my own kids to school with me. CHF is a condition that does change your life, but it does not define who you are or can be!!! It is a part of my daily life with medication, diet, and limited activity. I am even wearing a Life Vest while the medicine is working to heal my heart. I am strong, positive, and surviving CHF one beat at a time!

Wishing you well, Andrea!! Thank you for sharing your story!! Stay strong, girl!!

Posted in Awareness

Rock the Red Survivor Stories: Ali's Story

This year, for Rock the Red, I brought on fellow survivors who were willing to share their stories. Ladies whom I crossed paths with in an online support group for Women with heart disease. For years, I didn’t participate in any sort of support group; always thought I had things under control. But like anyone with a chronic illness or disease, it helps to have that extra support from others going through similar situations – a reminder that you to are not alone in the fight. I’d like to introduce Ali. Ali, like myself, has been dealing with heart disease for over a decade now. Ali has faced many aliments over the years, but she continues to live her life and turn to faith for additional support. No matter what life has thrown at her, she’s fought back! Here’s Ali’s story…

Hi everyone my name is Ali Arthur . This is my story of me and my heart:-)

In May 2001 I was in northern Maine, driving my school bus like I did every day. I was in the middle of my route when I started to feel sick, had to pull several times before I got the kids to school. Asked my boss if I could go home said yes. For three days I was weak, sick and had a massive headache. Called family doctor got in the same day. Blood pressure was off the charts, he took some tests and told me he was calling my husband. When he arrived, he said that I was having a silent heart attack. When all tests were confirmed, I had a massive heart attack, lowed part of my right muscle out of heart. They shipped me to Bangor Maine, 150 miles away to where there was the only place that could work on me. When I got there, they found out that my thyroid was bad and I had hyperthyroidism. They figured that is what caused the heart attack. They had to fix my thyroid 1st before they could fix my heart. 17 days later, I finally had open heart surgery, had a triple bypass, and remained in the ICU for many more days after. I did not come out of it very well. When I finally got home, I wasn’t home but a day or 2 and developed pneumonia and ended up being put in the hospital again for another 2 weeks, followed by a nursing home to do rehab and to learn how to do other things with my left arm. Yes, time kept going but I wasn’t getting any better. I ended up having lymphedema and my left side and part of my stomach had to be wrapped. This was very painful and I had to stay wrapped in these bandages for many weeks until the water come out of my leg and stomach. When I was in Bangor, they attempted to do another catheterization to check things and when I was taken back to my room, the cart pusher was messing around and the sandbag fell off my leg and I ended up with a blood clot in my right leg. I couldn’t hardly walk because my leg was so swollen. For the next few years, I was constantly in and out of the hospital with water retention, unstable angina, and other small things that would happened to me. I decided to move to Indiana and while I was here, I began having some minor heart attacks and ended up going back to the hospital again, where they did another catheterization and ended up having to put 3 stents into my chest. In order because 1 of them went thru one side to the other so in order to save my life, they had to put 2 more in for 3 stents total in my heart This was all in 2007. In 2008, I developed anemia, which did not help with my heart because when you have a anemia, you have a very hard time breathing. In 2013, I had a small stroke that went through my eye and it caused some problems with my vision and that’s when I got my defibrillator put in. I have a Metatronic defibrillator and I have not had any problems with it yet. In another few months, I will be getting a replacement, having the batteries changed out. I also have asthma, which I have had all my life, so between my thyroid and my anemia, and my heart, you can’t win because you everything together this you not to be able to breathe and you’re tired all the time and you feel like you run a race when you haven’t.
In 2014, I was diagnosed with afib and heart failure. I had to quit working because of constant fatigue. I have a wonderful cardiologist who calls me one of his special children. The medicine I take are better than the ones I took at the beginning. I don’t use salt and I rinse canned vegetables and I watch portions.
My diagnosis is as follows
Extreme right muscle heartattack .
3bypass also called cabbage
3stents
Coronary artery disease also called cad
Chronic systolic chf nyha class 2
Ischemic cardiomyopathy
Iron deficient anemia
asmama
Unstable angina
Acute hypodermic respiratory failure
Acute systolic heart failure
Afib
I just wanted to say in closing that’s women’s heart attacks are not always the same as men’s. We don’t always have classic chest and left arm pain, but we can have right wrist pain. Jaw pain, like a really bad toothache, and pain in the middle back between shoulders can be felt. I learned a long time ago not to worry so much about numbers and things that have already happened. I gave myself to God. One thing about not worrying so much is that you will live longer. Live for you, your family, and those who love and care about you. If you feel like you are depressed, ask doctor for medication; it’s nothing to be ashamed of. It is a tragic thing to go through.

Remember…LIVE FOR YOU, LIVE TO BE STRONG, IT’S NOT A DEATH SENTENCE! Love, Ali

We wish you well, Ali!! Thank you for sharing your story and letting others know that they are not alone in the fight!!

Posted in Awareness

Be a pebble in the water

Standing on the shores of a still pond, pebble in hand, you admire the mirror like reflection bouncing off of the top of the water. You toss the pebble in, and a series of small ripples flow outward from where the pebble just landed. Slowly but surely, the entire body of water is touched by the movement of this single pebble, ripples eventually making their way to the shore.

As I handed out red ribbons a few days ago to a group of individuals and began explaining the Rock the Red event coming up next month, one of the young men spoke up,

“There’s no way that 1 person can make a big difference?” He said as he examined the red ribbon in his hand. “So why do this?” The young man was puzzled and unsure how wearing a simple red ribbon could have any kind of impact at all.

“We’re spreading awareness!” is what I told him. “Someone is bound to ask you what you are wearing red for and you will tell them that you’re Rocking the Red for Women with Heart Disease.”

“But why only women?” he asked. And so began a brief conversation of why the focus was on the ladies and why it was important to discuss heart disease. Through maybe 10 minutes of speaking, I was able to offer some facts, some resources he could research online, as well as some personal tips I’ve learned from my own experiences-all of which he could take home and share with others. Later that evening, this individual reached out to me on messenger, thanked me for the information and shared with me the conversation he had with his mom. It was at this moment he realized that distributing a simple red ribbon sparked a conversation between us that ultimately resulted, in this case, him speaking to a loved one and encouraging her to seek out the medical care she needed because of the symptoms she had recently been experiencing. It was his “Ah-ha!” moment and he realized how a single person and a single red ribbon could create such a ripple effect and touch so many others. Needless to say, he was pumped when I told him I was able to mail him some ribbons he could share with his family and friends.

If you ever have doubts about how you can reach out and have an impact on the lives of others, remember, you to can be that tiny pebble creating ripples in the water.

“Just as ripples spread out when a single pebble is dropped in the water, the actions of individuals can have far reaching effects.” Dalai Lama